About UsAbout ALSCanada’s ALS StoriesNewsTake ActionContactDonate Now
Donate NowMedical professionnalsPatient & Families

ALS is not incurable: it is underfunded.

ALS can strike anyone, of any age, at any time. Right now, ALS is always fatal. It doesn't have to be this way.

Join our movement
living with ALS

About Us

ALS Action Canada is Canada’s only ALS patient-led charitable organization (BN# 791367204 RR 0001) building a movement to ensure urgent, equitable access to promising therapies for Canadians living with ALS; more and better clinical trials for ALS therapies throughout Canada; and increased federal and provincial investment in ALS research and support for patients, caregivers, and families. With members from across the country.

A man in a winter sweater is smiling and interacting warmly with a person in a wheelchair on a sunny day outside a building.
A middle-aged woman with gray hair, smiling while looking off to the side, standing outdoors with a blurred natural background.
Two people wearing purple shirts that read 'Walk to...' smiling and sharing a moment together. A woman with dark hair is laughing while a man wearing a baseball cap looks content.

Canada's ALS Stories

Discover the heartfelt stories of Canadian families living with ALS, showing their incredible strength and courage. By sharing these personal journeys, we hope to inspire progress in research and support, helping us all move closer to finding a cure.

Read their stories

Patient & Families

All you need to know if you or a family member have ALS

Medical Professionals

All you need to know if you are a medical professional

Donors

All you need to know if you would like to support ALS

Canada’s ALS Stories

September 5, 2024

The Unseen Heroes: Understanding and Supporting ALS Caregivers

Read more

August 9, 2024

Tofersen and the Future of ALS: A New Genetic Frontier

Read more

May 15, 2024

pALS & ALSAC member Matt Brown interview

Read more

Read more news

Join our fight to #EndALS!

Sign up as to receive periodic email updates and join our circle of supporters!

Privacy PolicyAbout ALSResearchStoriesNewsTake Action

Hope is on the Horizon

Although an ALS diagnosis has been treated as a death sentence, new treatments that can stop and even reverse progression are in development. 

Join the fight on social