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About Us

Founded in 2020, ALS Action Canada is Canada’s only patient-led non-profit organization building a movement to ensure urgent, equitable access to promising therapies for Canadians living with ALS; more and better clinical trials for ALS therapies throughout Canada; and increased federal and provincial investment in ALS research.
ALS Action Canada is a registered charitable organization (BN 791367204 RR 0001), with members from across the country forming a strong coalition of people living with ALS, their families, and their supporters.
We are part of a growing, global, patient-led movement dedicated to ending this devastating disease forever.

Our Vision

A world without ALS.

Our Mission

To support families living with ALS by mobilizing a patient-led, public movement to ensure swift and equitable access to promising therapies and clinical trials throughout Canada, and to ensure the federal and provincial governments increase investment in ALS research.

Our Goal

To #EndALS forever through advanced research, treatments, and trials that can detect ALS early and stop, reverse, or cure ALS.


Our Team

Jida El Hajjar, PhD

Executive Director - Directrice Générale

Don Wright, MEcon, PhD


Kevin Moorhead, MSc

Vice Chair

Roger Charles

Board Treasurer

Crystal Krandel

Board Secretary

Mark Kirton

Board Member

Darryl Borsato

Board Member

Kevin Daly

Board Member

Ed Skapin

Board Member

Adrian Molinski

Board Member

Erin Morantz

Board Member

Paul Thandi

Board Member

Jan Mattingly

Board Member

Rick Zwiep

Board Member

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