About Us
Founded in 2020, ALS Action Canada is Canada’s only patient-led non-profit organization building a movement to ensure urgent, equitable access to promising therapies for Canadians living with ALS; more and better clinical trials for ALS therapies throughout Canada; and increased federal and provincial investment in ALS research.
With members from across the country, we are a strong coalition of people living with ALS, their families, and their supporters. ALS Action Canada is part of a growing, global, patient-led movement dedicated ending this devastating disease forever.
Our Vision
A world without ALS.
Our Mission
To support families living with ALS by mobilizing a patient-led, public movement to ensure swift and equitable access to promising therapies and clinical trials throughout Canada, and to ensure the federal and provincial governments increase investment in ALS research.
Our Goal
To #EndALS forever through advanced research, treatments, and trials that can detect ALS early and stop, reverse, or cure ALS.

Our Team
Jida El Hajjar, PhD
Executive Director - Directrice Générale
Don Wright, MEcon, PhD
Chair
Kevin Moorhead, MSc
Vice Chair
Roger Charles
Board Treasurer
Crystal Krandel
Board Secretary
Mark Kirton
Board Member
Darryl Borsato
Board Member
Kevin Daly
Board Member
Ed Skapin
Board Member
Adrian Molinski
Board Member
Erin Morantz
Board Member
Paul Thandi
Board Member
Jan Mattingly
Board Member
Rick Zwiep
Board Member