Founded in 2020, ALS Action Canada is Canada’s only patient-led non-profit organization building a movement to ensure urgent, equitable access to promising therapies for Canadians living with ALS; more and better clinical trials for ALS therapies throughout Canada; and increased federal and provincial investment in ALS research.

With members from across the country, we are a strong coalition of people living with ALS, their families, and their supporters. ALS Action Canada is part of a growing, global, patient-led movement dedicated ending this devastating disease forever.

To support families living with ALS by mobilizing a patient-led, public movement to ensure swift and equitable access to promising therapies and clinical trials throughout Canada, and to ensure the federal and provincial governments increase investment in ALS research.

Our Goal