Founded in 2020, ALS Action Canada is Canada’s only patient-led non-profit organization building a movement to ensure urgent, equitable access to promising therapies for Canadians living with ALS; more and better clinical trials for ALS therapies throughout Canada; and increased federal and provincial investment in ALS research.
With members from across the country, we are a strong coalition of people living with ALS, their families, and their supporters. ALS Action Canada is part of a growing, global, patient-led movement dedicated ending this devastating disease forever.
A world without ALS.
To support families living with ALS by mobilizing a patient-led, public movement to ensure swift and equitable access to promising therapies and clinical trials throughout Canada, and to ensure the federal and provincial governments increase investment in ALS research.
To #EndALS forever through advanced research, treatments, and trials that can detect ALS early and stop, reverse, or cure ALS.
Jida El Hajjar, PhD
Executive Director - Directrice Générale
Don Wright, MEcon, PhD
Kevin Moorhead, MSc