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WE WON'T STOP UNTIL WE #ENDALS!

ALS is not incurable: it is underfunded.

ALS can strike anyone, of any age, at any time. Right now, ALS is always fatal. It doesn't have to be this way.

ALS Action Canada is Canada's only ALS patient-led charitable organization (BN# 791367204 RR 0001) building a movement to ensure urgent, equitable access to promising therapies for Canadians living with ALS; more and better clinical trials for ALS therapies throughout Canada; and increased federal and provincial investment in ALS research and support for patients, caregivers, and families. With members from across the country, we are a strong coalition of people living with ALS, their families, and their supporters. ALS Action Canada is part of a growing, global, patient-led movement dedicated to ending this devastating disease forever.

Canada’s ALS Stories

December 13, 2024

United on Parliament Hill: Advocates and NHL Legends Rally for ALS Awareness

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September 5, 2024

The Unseen Heroes: Understanding and Supporting ALS Caregivers

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August 9, 2024

Tofersen and the Future of ALS: A New Genetic Frontier

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Hope is on the Horizon

Although an ALS diagnosis has been treated as a death sentence, new treatments that can stop and even reverse progression are in development. 

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