Storytelling is a powerful way to connect with others with shared experiences, especially in the ALS community. Stories can shine a light on the impacts of ALS, raise awareness about the disease, and help inspire and motivate others to drive change.
The journey with ALS impacts entire families, and the need for proactive care and support is critical. Thank you, Paula Trefiak, for sharing your powerful perspective and being a tireless advocate. “When we have more and more people like my son wanting to get tested, wanting to find out and
Empowering the patient voice is at the heart of everything we do. We’re so grateful for members like Terry Loustel who share their experiences and drive our mission forward. “That’s part of the reason why I’m excited about ALS Action Canada because it’s people with ALS that are driving it…
We are extremely saddened to have lost Mark Kirton, ALS Action Canada Board Director, ALS warrior and former NHL’er. Mark found a community and outlet to focus his fundraising and advocacy efforts in his work and leadership of ALS Action Canada, the only ALS patient-led organization in Canada. Among his
Living with ALS is never easy, but you don’t have to go through it alone. For Rick Zwiep, diagnosis came with uncertainty, but also a mission: to turn isolation into action. Supported by his care team, who help monitor treatment and ensure access to the best possible therapies, Rick found
