Paula Trefiak

The journey with ALS impacts entire families, and the need for proactive care and support is critical. Thank you, Paula Trefiak, for sharing your powerful perspective and being a tireless advocate.

“When we have more and more people like my son wanting to get tested, wanting to find out and get pre-symptomatic care, which doesn’t exist equitably across the country right now, I think that’s a definite failure on the system. I would also like to see psychology services included in pre-symptomatic care. These are some of the reasons my son and I are Members of ALS Action Canada and something I try to advocate for.” – Paula Trefiak

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Sabrina Baker

This February, we’re celebrating the love, generosity, and hope that fuel our ALS community – from donors, caregivers, and advocates who continue to show up in meaningful ways. One powerful example is Sabrina Baker, Chief Changemaker & Founder of Blonde Ambition. Motivated by her father’s ALS diagnosis, Sabrina created the

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