Together,
we will end ALS.
Who we are
a movementled by patients – driven by urgency
ALS Action Canada is Canada’s only national, ALS patient and caregiver-driven organization focused on raising patient voices and building a movement toward ending ALS. Through our ALS Super Fund, ALS Action Canada fuels its work and directs funds to other organizations leading in ALS programs, research, and advocacy to advance trials, treatments and research. Together, we will #endALS.
VISION,MISSION & GUIDING PRINCIPLES
Vision
A world without ALS.
Mission
To support families living with ALS by mobilizing a patient-led, public movement to advance affordable and improved care, swift and equitable access to promising therapies and clinical trials throughout Canada, and to ensure the federal and provincial governments increase investment in ALS research.
Guiding Principles
- Deep compassion
- Relentless positivity
- Humility
- Collaboration
- Effectiveness
- Accountability
- Integrity
Our engine for change
ALS Super Fund
– united in ending als
Led by ALS Action Canada and guided by an expert Advisory Council, the ALS Super Fund mobilizes and convenes people, communities, and organizations to raise awareness about and fund the most innovative work in advancing care, treatment, trials and research toward ending ALS in North America.
OUR JOURNEY
From a spark of courage
to a national movement
Courage ignited change — now a movement drives it forward.
HISTORY & founders
Our
leadership
executive director
Leigh Naturkach
Board of Directors
- Darryl Borsato
- Roger Charles, Treasurer
- Kevin Dawson
- Louis Del Re
- Jeff Jackson
- Lisa Kirton
- Adrienne Molinski
- Kevin Moorhead, Vice-Chair
- Erin Morantz
- Cali Orsulak
- Paul Thandi
- Don Wright, Chair
- Rick Zwiep
ALS Super Fund Advisory Council
- Dr. Ammar Al-Chalabi
- Dr. Merit Cudkowicz
- Dr. Andrew Darke
- Dr. Angela Genge
- Dr. Wendy Johnston
- Dr. Lawrence Korngut
- Dr. Colleen O’Connell
- Cali Orsulak
- Don Wright
- Dr. Lorne Zinman
- Rick Zwiep
Advocacy Committee
- Darryl Borsato
- Dr. Andrew Darke
- Louis Del Re
- Saba Manzoor
- Chris May
- Leigh Naturkach
- Cali Orsulak
- Dave Taylor
- Don Wright
- Rick Zwiep
FUNDRAISING Committee
- Gino Del Re
- Louis Del Re
- Wade Hall
- Shannon MacPherson
- Kevin Moorhead
- Erin Morantz
- Leigh Naturkach
- Amanda Tam
- Dave Taylor
Governance & Finance Committee
- Roger Charles
- Kevin Dawson
- Erin Morantz
- Leigh Naturkach
Membership Committee
- Colleen Hudson
- Kim McGlade
- Adrienne Molinski
- Leigh Naturkach
- Paul Thandi
- Rick Zwiep
Partners & COLLABORATORS
our partners in the als community
Donors & Supporters
