Storytelling is a powerful way to connect with others with shared experiences, especially in the ALS community. Stories can shine a light on the impacts of ALS, raise awareness about the disease, and help inspire and motivate others to drive change.
This February, we’re celebrating the love, generosity, and hope that fuel our ALS community – from donors, caregivers, and advocates who continue to show up in meaningful ways. One powerful example is Sabrina Baker, Chief Changemaker & Founder of Blonde Ambition. Motivated by her father’s ALS diagnosis, Sabrina created the
In 2025, Ron Keefe, owner of Granite Brewery, was diagnosed with ALS. Since then, the Keefe family has turned their shared love of craft brewing into action for the ALS community. Through the Ales for ALS program, Granite Brewery launched Keep on Buzzin’ – a special brew named in honour
At the end of 2025, Jake Thompson, Co-Founder of Bumpy Road Productions, created a short video to share with his family and friends – a personal reflection on living with ALS, connection, and hope. What he didn’t expect was how widely it would resonate. The video has since reached over
“When diagnosed with ALS, you feel gutted. But finding a community that truly understands the challenges, questions, and complexities of the disease can be a pivotal source of understanding.” Thank you, Colleen Hudson, for sharing your powerful story and for being a Member of ALS Action Canada.
The journey with ALS impacts entire families, and the need for proactive care and support is critical. Thank you, Paula Trefiak, for sharing your powerful perspective and being a tireless advocate. “When we have more and more people like my son wanting to get tested, wanting to find out and
Empowering the patient voice is at the heart of everything we do. We’re so grateful for members like Terry Loustel who share their experiences and drive our mission forward. “That’s part of the reason why I’m excited about ALS Action Canada because it’s people with ALS that are driving it…
Living with ALS is never easy, but you don’t have to go through it alone. For Rick Zwiep, diagnosis came with uncertainty, but also a mission: to turn isolation into action. Supported by his care team, who help monitor treatment and ensure access to the best possible therapies, Rick found
