Rick Zwiep on originALS – Nothing About Us, Without Us

When Rick Zwiep was diagnosed with ALS in August 2022, he chose connection over silence.

At ALS Action Canada and the ALS Super Fund, we are proud to stand alongside Rick, not just as a member of our community, but as a leader. Rick serves on our Board of Directors at ALS Action Canada, leads our ALS Community group, and sits on the ALS Super Fund’s Advisory Council, ensuring patient voices help guide how donated dollars are invested across the country.

This is what a patient-led movement looks like. Science is shaped by lived experience. Research driven by urgency. Support grounded in understanding.

Thank you to the originALS: more than ALS podcast and hosts Flynn Mason and Hayley King for featuring Rick’s story and our work. 

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