Terry Loustel

Empowering the patient voice is at the heart of everything we do. We’re so grateful for members like Terry Loustel who share their experiences and drive our mission forward.

“That’s part of the reason why I’m excited about ALS Action Canada because it’s people with ALS that are driving it… I’ve felt more empowered listening to other patients about how they want to see this organization run.” – Terry Loustel

Join us in building a community where every voice is heard and valued. Learn more about becoming a member: Contact Leigh Naturkach for more information at leigh@alsactioncanada.org

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Sabrina Baker

This February, we’re celebrating the love, generosity, and hope that fuel our ALS community – from donors, caregivers, and advocates who continue to show up in meaningful ways. One powerful example is Sabrina Baker, Chief Changemaker & Founder of Blonde Ambition. Motivated by her father’s ALS diagnosis, Sabrina created the

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The Keefe Family

In 2025, Ron Keefe, owner of Granite Brewery, was diagnosed with ALS. Since then, the Keefe family has turned their shared love of craft brewing into action for the ALS community. Through the Ales for ALS program, Granite Brewery launched Keep on Buzzin’ – a special brew named in honour

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Jake Thompson

At the end of 2025, Jake Thompson, Co-Founder of Bumpy Road Productions, created a short video to share with his family and friends – a personal reflection on living with ALS, connection, and hope. What he didn’t expect was how widely it would resonate. The video has since reached over

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