Living with ALS is never easy, but you don’t have to go through it alone.
For Rick Zwiep, diagnosis came with uncertainty, but also a mission: to turn isolation into action. Supported by his care team, who help monitor treatment and ensure access to the best possible therapies, Rick found strength not just in medicine, but in people.
He joined ALS Action Canada as Board Director, Advocacy Committee Member, and host of the Patient Group, offering a powerful reminder that lived experience is a form of leadership. As an outspoken advocate, Rick now uses his voice to push for change and to support others.
Community is everything. Through ALS Action Canada’s virtual peer support group, people living with ALS share daily struggles, coping tips, and encouragement. It’s more than a meeting, it’s a lifeline.


