Paula Trefiak

October 5, 2025

The journey with ALS impacts entire families, and the need for proactive care and support is critical. Thank you, Paula Trefiak, for sharing your powerful perspective and being a tireless advocate.

“When we have more and more people like my son wanting to get tested, wanting to find out and get pre-symptomatic care, which doesn’t exist equitably across the country right now, I think that’s a definite failure on the system. I would also like to see psychology services included in pre-symptomatic care. These are some of the reasons my son and I are Members of ALS Action Canada and something I try to advocate for.” – Paula Trefiak

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Sabrina Baker

February 14, 2026

This February, we’re celebrating the love, generosity, and hope that fuel our ALS community – from donors, caregivers, and advocates who continue to show up in meaningful ways. One powerful example is Sabrina Baker, Chief Changemaker & Founder of Blonde Ambition. Motivated by her father’s ALS diagnosis, Sabrina created the

The Keefe Family

January 26, 2026

In 2025, Ron Keefe, owner of Granite Brewery, was diagnosed with ALS. Since then, the Keefe family has turned their shared love of craft brewing into action for the ALS community. Through the Ales for ALS program, Granite Brewery launched Keep on Buzzin’ – a special brew named in honour

Jake Thompson

January 20, 2026

At the end of 2025, Jake Thompson, Co-Founder of Bumpy Road Productions, created a short video to share with his family and friends – a personal reflection on living with ALS, connection, and hope. What he didn’t expect was how widely it would resonate. The video has since reached over