Our News

During National Volunteer Week, we recognize volunteers who are helping drive progress toward ending ALS. Chris May brings decades of advocacy experience to ALS Action Canada’s Advocacy Committee – now with a deeply personal mission. Living with ALS, Chris is using his knowledge of government to help drive awareness, influence change, and push for progress toward ending ALS.

Hear from Louis Del Re, a person living with ALS, who has channelled his diagnosis into fundraising for the cause, and Leigh Naturkach, Executive Director of ALS Action Canada and Cause Leader of the ALS Super Fund, as they share what courage looks like up close. Watch the webinar

When Rick Zwiep was diagnosed with ALS in August 2022, he chose connection over silence. At ALS Action Canada and the ALS Super Fund, we are proud to stand alongside Rick, not just as a member of our community, but as a leader. Rick serves on our Board of Directors

This February, we’re celebrating the love, generosity, and hope that fuel our ALS community – from donors, caregivers, and advocates who continue to show up in meaningful ways. One powerful example is Sabrina Baker, Chief Changemaker & Founder of Blonde Ambition. Motivated by her father’s ALS diagnosis, Sabrina created the

In 2025, Ron Keefe, owner of Granite Brewery, was diagnosed with ALS. Since then, the Keefe family has turned their shared love of craft brewing into action for the ALS community. Through the Ales for ALS program, Granite Brewery launched Keep on Buzzin’ – a special brew named in honour