At the end of 2025, Jake Thompson, Co-Founder of Bumpy Road Productions, created a short video to share with his family and friends – a personal reflection on living with ALS, connection, and hope. What he didn’t expect was how widely it would resonate. The video has since reached over 16,000 people, reminding us how powerful real stories can be.
Jake’s video is a beautiful example of how lived experience can create understanding, comfort, and connection – not just for those living with ALS, but for friends, families, and anyone trying to better understand this disease.
We’re grateful to Jake for his joining as a Member of ALS Action Canada, and for sharing his voice and helping shine a light on the human side of ALS.
Follow Jake at @wejoinjake for more.


