For many, advocacy is a profession. For others, it becomes personal. For Chris May, it is now both.

After decades navigating government systems and shaping legislative outcomes, Chris has brought that same expertise to ALS Action Canada’s Advocacy Committee – this time with a deeply personal mission: helping push for progress toward ending ALS.

From Parliament Hill to Patient Advocacy

Chris’s career has been rooted in advocacy at the highest levels. From early work on Parliament Hill and at Queen’s Park to consulting on complex legislative issues, he built a reputation for understanding how systems work – and how to change them.

One notable achievement included securing a rare legislative amendment for the Institute of Chartered Accountants of Ontario, successfully navigating opposition dynamics to influence policy at a critical stage.

Today, those same skills are being applied in a new context.

“I had this career, and now I can use those skills to help myself and others impacted by ALS.”

A Diagnosis That Changed the Focus

Chris was diagnosed with ALS on October 27, 2025, following a long and complex medical journey.

What began with physical symptoms after a car accident led to months of testing, consultations, and uncertainty. Ultimately, the diagnosis was confirmed with the support of emerging biomarkers.

Throughout the process, Chris approached the situation the same way he approached his career: by asking questions, seeking clarity, and staying informed.

A Personal Shift

Chris lives in Niagara with his partner, Melanie, and son, Daniel. Always active in sports and hands-on projects, ALS has required a fundamental shift in how he approaches daily life.

“Instead of being the tradesperson, I’m now the contractor.”

Where he once did the work himself, Chris now leads it differently – planning, directing, and adapting as needed.

Surrounded by strong support from his family and community, Chris remains grounded in what matters most.

“I feel very blessed.”

Channelling Experience into Impact

Since his diagnosis, Chris has turned his focus toward action.

He has raised over $16,000 through his upcoming participation in ALS walks in Niagara and Mississauga/Etobicoke, and continues to expand his efforts in fundraising and awareness.

“It’s about raising funds, but also raising awareness. The more concerned the public is, the more likely it is that government will act – and that’s how change happens.”

“I want to use my knowledge of government to support advocacy efforts and help push for an end to ALS. Together, we can end ALS.”