Jake Thompson

At the end of 2025, Jake Thompson, Co-Founder of Bumpy Road Productions, created a short video to share with his family and friends – a personal reflection on living with ALS, connection, and hope. What he didn’t expect was how widely it would resonate. The video has since reached over 16,000 people, reminding us how powerful real stories can be.

Jake’s video is a beautiful example of how lived experience can create understanding, comfort, and connection – not just for those living with ALS, but for friends, families, and anyone trying to better understand this disease.

We’re grateful to Jake for his joining as a Member of ALS Action Canada, and for sharing his voice and helping shine a light on the human side of ALS.

Follow Jake at @wejoinjake for more.

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Sabrina Baker

This February, we’re celebrating the love, generosity, and hope that fuel our ALS community – from donors, caregivers, and advocates who continue to show up in meaningful ways. One powerful example is Sabrina Baker, Chief Changemaker & Founder of Blonde Ambition. Motivated by her father’s ALS diagnosis, Sabrina created the

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The Keefe Family

In 2025, Ron Keefe, owner of Granite Brewery, was diagnosed with ALS. Since then, the Keefe family has turned their shared love of craft brewing into action for the ALS community. Through the Ales for ALS program, Granite Brewery launched Keep on Buzzin’ – a special brew named in honour

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Colleen Hudson

“When diagnosed with ALS, you feel gutted. But finding a community that truly understands the challenges, questions, and complexities of the disease can be a pivotal source of understanding.” Thank you, Colleen Hudson, for sharing your powerful story and for being a Member of ALS Action Canada.

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