This coordinated day of action, spearheaded by ALS Canada, had representation from 41 ridings and included meetings with 23 MPs and Senators. Notably, nine MPs heard directly from the ALS community for the first time, underscoring the importance of this collective.
The Canadian Collaboration to End ALS joined together for a day on the Hill, bringing together national organizations, advocates, and people affected by ALS for a unified call to action in Ottawa, calling for $50M in federal funding.
ALS Action Canada was proud to be the only ALS patient-led organization standing alongside ALS organizations, patients, and families as part of this collective effort – meeting with Members of Parliament, Senators, and Health Canada officials to push for federal investment in ALS research in Canada.
The Canadian Collaboration to Cure ALS brings together three existing, proven, made-
in-Canada initiatives into one coordinated national strategy.
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CAPTURE ALS – expands to 12 research-ready sites to deepen understanding of ALS biology and translate discoveries into trials faster.
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CNDR (Canadian Neuromuscular Disease Registry) – builds a national database enrolling every Canadian living with ALS, creating real-world patient data to accelerate trials and track the disease.
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CALS (Canadian ALS Research Network) – ensures Canadians in rural and remote areas have the same opportunity to participate in and benefit from trials, breaking down geographical barriers.
Read more about the Canadian Collaboration to Cure ALS in ALS Canada’s feature article. We look forward to keeping you updated on our progress.