The journey of several ALS Action Canada pALS was presented at the CORD Fall Conference 2023. Our Executive Director presented in the first morning session “How Patients Are Shaping Canada’s Rare Disease Ecosystem” where there was discussion of how “grass-roots” patient organizations led by patients and parents are driving advances in rare disease diagnosis, care and treatment.
Jida shared profiles of 4 of our pALS – two who sadly passed from ALS in the past year, as well as two pALS currently active in ALSAC.

A video replay of the session, as well as the slides are available to attendees via CORD: